Apraxia. Such a deeply shattering word when you first hear it. It’s a disorder that’s troubling enough to make you fear the struggles that lie ahead of you and yet at the same time, grateful that it’s not something worse.
After I googled this word to death and after the diagnosis sank in a few tears later, I learned something about myself. Somewhere deep beyond the worry, there was hope. Hope that one day my child will speak just like everyone else. Hope that one day he’ll be able to invite a friend over to play. Hope that one day he’ll be able to belt out a Christmas carol and sing louder than any of his friends at school.
I start this project at the beginning of December, which as a mother is a very ambitious goal! Logic would tell me to wait until the second or third week of January; when the sugar has filtered out of the kids systems, after the Christmas presents have been bought, after the house has been cleaned, decorated, trashed during Christmas Break, and then all tidied up after the new year. But, I know that now is the time because I can’t seem to get this site out of my mind.
So, here it goes … for the time being, I’m blowing off the other responsibilities that seem to consume my life, and I’m jumping into blogging. When I first entered into the world of apraxia, I was devastated, confused, and overwhelmed at all the information that was out there. But I found that reading stories from other mothers who were facing challenges that were similar to or even much worse than mine, inspired me. They gave me knowledge to make the right decisions. They gave me the strength and courage to keep on trying and to never give up.
My son, Jake, is now 3.3 years old and since he was about 1.5, I have spent many hours researching on the computer. I have visited many professionals – our pediatrician, an allergy doctor, a naturopathic physician, and several speech therapists. During this time, I have learned a lot. Important things I wrote down. Inspiring things I printed out and posted on my computer or on my refrigerator so that I can revisit them on a daily basis. And after all this time of searching, I finally feel like I’m on the right track … and for this, I feel blessed.
My ultimate goal for this blog is to share what I have learned about apraxia and what I continue to learn each day. I want to share what works for us and what doesn’t. I have spent some time spinning my wheels this year and I hope to drive more people forward in their own journey.
I also want to track our own progress. I do not want to dismiss or forget how hard Jake works or the accomplishments that he makes each and every day. My ultimate goal is for him to be communicating in some form by the time he starts kindergarten in two years. I will do everything in my power to get him there.
This is our journey – you’re welcome to join us for the ride.
4 thoughts on “Life is a Journey, Not a Destination”
Found you from Pattie bka Apraxia Mom 🙂 I am an apraxia mama, too. I blog at http://www.maggieandluke.blogspot.com and I have a facebook page for Unlocking Luke’s Voice. I think Luke and Jake are about the same age and fighting the same war with words. Would love to chat with you one day.
Hi! I just signed up to follow your blog. I left a comment under your latest post, but I’m not sure if it published or not. I’m still figuring out this high-tech world of blogging, facebooking, twittering, etc.! I’m looking forward to following you. Jake was born in September of 2008, so our boys are the exact same age! I’m sure we’ll be able to get some good ideas from each other. 🙂
My son was born in Dec 2008 and we are working hard to get him ready for for school also with his apraxia!
Hi, my name is Julie and I also have a Jake. My Jake just turned two and we just hear the word apraxia for the first time a few weeks ago. We are just starting this journey into diagnosis and treatment and I must say it is very scary. I am trying to connect with other moms who can relate to these feelings and stumbled upon your blog. If you are interested, I have a blog as well and I would love to chat sometime.