Jake's Journey with Apraxia

And the Friends We Met Along the Way

diet

I was inspired to seek out alternative medical treatment for Jake in 2012 when I stumbled across this research study: Syndrome of Allergy, Apraxia, and Malabsorption: Characterization of a Neurodevelopmental Phenotype that Responds to Omega 3 and Vitamin E Supplementation, by Claudia Morris, MD and Marilyn Agin, MD. 

The results of the experiment suggest that apraxic children are sensitive to gluten coupled with other nutritional deficiencies caused by malabsorption. Essentially, the body is not absorbing the nutrients that it takes in and the result is a faulty system that doesn’t operate as it should. The stats impressed me – 97% of the 187 children showed some level of improvement with supplementation – and I set off on my quest to discover the root cause of Jake’s apraxia.

We are a success story: a little over a year after starting our diet/supplement program, Jake tested out of apraxia and a few months after that, he was dismissed from speech therapy. I believe our formula for success was: healthy diet + supplements for deficiencies + speech therapy + hand cues. Once Jake began the diet/supplement program, speech therapy started to click, and his voice took off.

Disclaimer: All data and information on this site are for informational purposes only. Always consult with a doctor before beginning any diet or supplement program.

tori

 

 

 

 

videos left

 

 

 

food

2 thoughts on “diet and supplements

  1. Stephanie says:

    Tori – For so long I have wanted to write you to thank you ! But I couldn’t seem to put aside time to write down a few brainstorming notes of all the things I’ve wanted to tell you and thank you for ! Not that I didn’t want to just that sometimes it was so painful to look back on everything my husband and I and our little guy has gone through! I first found you on Pinterest when I finally built up the courage to enter the word apraxia in the search box . Once I found jakes journey I was hooked 😍😭 I spent many nights reading your blogs and researching everything you talked about . My hubby would leave for work at 5 am and I would wake up and say guess what I read on jakes journey last night !!!!!!!!!! I would sob many nights reading your blog because we were no longer alone ! We had answers ,we had hope , we had you ! My son Gabriel is now five and talking and doing fantastic ! My husband and I are a great team and my little guy is such a stud he never stops trying !!! With so much of your helpful tips and info and sharing all the great things you did for jake it really helped us put our foot in a direction when we really needed it. We took our son to a naturalist (homeopathic dr) changed his diet and really worked on healing his gut before we knew it the words started to come 😭😭 we talked our SLP into getting PROMPT trained and worked a ton at home on our homemade kofman cards 🙂 and in two weeks my little boy will go to kindergarten 😩 But it will good ! God bless you Tori 🙂 your family is lucky to have you – we were lucky to have you ! Thank god for you and sharing jakes journey ! If it wasn’t for you I don’t know …. well.. I don’t like to think negative anymore. It was on my bucket list to tell you that you have changed lives with your blog( you changed ours ) guess now I can mark it off . From the bottom of our hearts THANK YOU forever❤️❤️❤️❤️

    1. Tori says:

      Stephanie, Thank you so much for sharing your story with me. Wow, this really made my heart happy … made me teary to hear what an impact the blog has made on you and Gabriel’s journey with apraxia. I am so glad he is doing well and is about to begin kindergarten! That’s a huge milestone for us apraxia mamas since in the beginning we don’t know what the future holds for our children. It’s a victorious moment for sure so enjoy embracing it! I still have a heart for apraxia – the passion for these kids has never left me – and I hope one day I can do more to serve this community like with a non-profit or diet/supplement research. Words like yours water that seed that’s planted in my heart. Thank you again for opening up and GOOOOO Gabriel and you for kicking some apraxia butt!!! 🙂

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s

%d bloggers like this: