Jake's Journey with Apraxia

And the Friends We Met Along the Way

A couple of weeks ago I had a consult with Jake’s allergist. It was hard for me to put myself out there and discuss histamine intolerance and syndrome of allergy, apraxia, and malabsorption with him because they are not recognized as “official” conditions in the United States. We’ve been seeing Jake’s allergist since he was …

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“It’s complicated.” That’s what I’ve started replying when people ask, “What’s Jake allergic to?” I usually then follow-up with, “Technically he’s allergic to fish and peanut, but there’s a lot more to his situation.” Regarding food, we have experienced it all. IgE anaphylactic-type allergies, intolerances, and we have even been three-year participants in the Great Gluten-Free Casein-Free …

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Despite Jake’s mild immunodeficiency and slight gut inflammation, I want to stress that I am 100 percent full of gratitude that I have a remarkably healthy child. With the right diet and environment, his problem is not severe and is very manageable. For the most part, I believe he will always have to eat healthy and …

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In the spring of this year, we tried the colostrum our integrative doctor had recommended, but Jake developed allergy symptoms. I decided to take him off of it. My husband and I also voted no to Singulair. We decided to keep doing what we’re doing as it appears to slowly, but surely, be working. Getting …

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It has been forever since I last reported on the status of Jake’s allergies.  I have written this blog post many times in my head, but I just kept waiting for my thoughts, emotions, and consequently – solutions – to become more black and white. I am finally confident in my stance after countless gray …

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If you were cured today, sleep would come easy and the exhausted worry that I have felt for such a long time would be lifted. I wouldn’t wake up every couple of hours to stare at the ceiling with my heart racing and medical terms shouting out in my mind. If you were cured today, …

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