Jake's Journey with Apraxia

And the Friends We Met Along the Way

by Jayme, Contributing Writer

“Mama, mama! Pay be mean! Pay be mean!”

Usually this type of tattle
telling would annoy a mom and get a sigh before going to settle 
whatever silly fight the kids were having. To me, it was a milestone,
 a beautiful declaration of emotion.

Our son Tyson lived almost three years of his life saying nothing. There
 were a few sounds, but mostly cries of emotion, angry outbursts and an
 earnest desire to be heard. We worked hard to understand him and let
 him know we were trying, but without any words we could only guess or
 assume what he was “saying.”

Yesterday I heard him. I truly heard him.

When he cried out that his 
sister was being mean in the car, I just about pulled over and cried.
 Those were words, maybe without ending sounds, but it was clear as
 day. Sister was being mean to him and he was upset.

Nowadays our house isn’t just the endless chatter of our girls. Now
 there is a new voice, Tyson’s voice.

“I wan cookie.”

“I wan do it.”

“I wan pay.”

“Mama, pee pee.”

“My turn.”

“Pay share.”

“‘ank you.”

When we first found out Tyson had apraxia, we were devastated. How
 could this perfect little boy have something “wrong” with him?

After almost 2 years of assessments, speech therapies, occupational therapies, grinding day in and day out, we can see a future. We can see what sacrifice and hard work can do for our son. We can see a little boy that is stronger than anyone we’ve ever met.

Along with his tenacity and determination, Tyson has always been the sweetest and most loving little boy, even when he couldn’t speak. He is such a big brother and knows when
 something is wrong or when someone is sad or hurt. He is always the first one to give a hug or kiss and genuinely cares about his family. So much feeling and emotion was written on his face and its refreshing and pure joy to see him able to verbalize that now.

To have this new way of seeing him, hearing him, knowing him, is 
something I will never be able to explain. It’s like I’m meeting him 
for the first time and I get to fall in love all over again.

Tyson still has a long way to go before the world will hear him as
 clearly as we do, but I know that day will come. He will have a voice 
louder than most.

Tyson has worked so hard attending Foundations Developmental House, usually 4-5 times a week. Day after day after day he walks in to FDH and gets to work. This fall he will be attending priority pre-school and I have no doubt he will continue to grow and excel as a student and as a person.

Tyson taught us different is beautiful. Different is interesting. 
Different is strong. Different is smart. Different is funny. Different
 is loving. Different is perfect.

I thank God for sending us Tyson, to remind me everyday what it means to be strong.

3 thoughts on “I Can Hear You

  1. Kellie says:

    What a special post! Just yesterday, my little 3 year old Grandson, Kye, told me just what he wanted to be when he grows up. Kye has an older brother, Krew, who is a non-stop talker. Krew was telling me (his Nonny) what he wanted to be when he grows up. Krew said, “Nonny, I can’t decide if I want to be a doctor, mechanic, or a policeman.” Then Kye (who has apraxia), chimed in, “Nonny, fire uck.” Fire hose, put out fires” “Fire man” My heart just melted. I said, “Kye, do you want to be a fireman when you grow up, and he said, “Yes.” My mind took me back about a year ago, when Kye only spoke a few words. We have been getting him speech therapy 3 times a week, plus we work with him at home. It has made a huge difference. I know that this very loving, precious little boy, will grow up to be something special! I’m so thankful for this precious moment he shared with his Nonny. Thank you so much for your post!
    Kellie Duke

  2. sheilatufano says:

    This is a great post Jayme, so beautiful! Tyson is having a breakthrough, and that makes me so excited for your family! He is just the sweetest 🙂

  3. Jen says:

    Thank you for sharing his story! Our lil man has struggled also and I felt so alone and judged on “how” we were resolving the struggle for him. You are such a great example of the fight for the healing.

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s

%d bloggers like this: