Jake's Journey with Apraxia

And the Friends We Met Along the Way

Passion. Raw. Knowledge. Fierce Love. Powerful. Selflessness. Unstoppable. Determined. Confident. Movers and Shakers.

These are just a few words that come to mind when I think about The Thinking Moms, the words they write, their Revolution, and their new book that was just released this month.

TMR-Book

I read a lot of books and what I love about “The Thinking Moms’ Revolution Autism beyond the Spectrum: Inspiring True Stories from Parents Fighting to Rescue their Children” is that their words pull me in. The truth they speak can bring tears to my eyes in an instant and ignite my soul. They give me courage to go on and they make me more determined than ever to beat apraxia.

Why? What makes this group of moms and one dad so inspirational?

Because their stories are strikingly similar to mine, only they have faced and persevered through more challenges. Their words are my heart and soul … everything I believe to be true now and everything that I have felt and experienced in the past.

Just to clarify, my son does not have autism, but after reading this book, I had confirmation of what I have felt all along … This could easily have been me. This could have been my baby. I feel this way because many of the symptoms that Jake has experienced with apraxia overlap into the world of autism.

If you’ve never heard of The Thinking Moms and their book, here’s what their blog has to say …

Twenty-three moms and one brave dad make up The Thinking Moms’ Revolution. Their group stretches from Montana to Malaysia to Montreal. While parenting children with disabilities, they came together on Facebook to collaborate about bio-medical and dietary interventions, as well as doctors and researchers developing cutting edge treatments. In the process they became a tight-knit family dedicated to helping their children lose their diagnoses. Out of this collaboration they have created something far more substantial. Suspecting that the roots of their children’s autism, adhd, asthma, sensory processing disorder and food allergies may be found in the overuse of antibiotics, preventative medical care, environmental toxins and processed food, they began a mission to turn it around!

I think one of the many strengths of this book is that each chapter is about a different family. Each parent tells their child’s story and everything that has come with it – past, present, and hope for the future. There are 24 of these stories and if you integrate all of their on-the-job experience, you’ve got a book chalked full of just about every kind of therapy, emotion, and situation imaginable. They have all traveled similar journeys fueled by intense love, but their paths have been different … this is what makes this book so good.

I also love their nicknames for each other – Blaze, DragonSlayer, LuvBug, Poppy, Booty Kicker, The Rev, Goddess, Twonk, Sunshine, Prima, Tex, Savage, Cupcake, Mamacita, Saint, The Count, Mama Mac, Sugah, Princess, Money, Snap, Mountain Mama, Professor, and MamaBear.

One of my favorite chapters was “The Professor’s Fractured Fairy Tale” because it was a story on apraxia. I have this book on my Kindle and while I highlighted loads of potential therapy solutions and witty sentences as I went along, when I got to this chapter I sped through it, not marking anything. I soaked in each word, almost holding my breath throughout it, because I was so taken in by this story.

The Professor’s son, Bryce, has a story similar to Jake’s … allergies, apraxia, ear infections, asthma, antibiotics, and abnormal stools. These two boys qualified for early intervention at the same age – 27 months – and we both have seen a huge response to bio-medical intervention coupled with speech therapy.

She articulated what I feel to be true in my own heart, as I too, have spent a lot of time reading books on autism and visiting these online communities. The Professor writes,

Sometimes I wonder about how I came to be so deeply involved with autism parents, given that I don’t have any children “on the spectrum.” Personally, I have come to believe that “the spectrum” is really much broader than we think it is. Yes, maybe my children are not classified with autism (and I hope they never will be!), but both have (or had) neurological impairments that are helped by similar treatments and, in all likelihood, caused by similar processes. In fact, I now believe that most, if not all, of the modern chronic illnesses so prevalent today have similar roots. As autism numbers have risen, so have those for diabetes, asthma, ADHD, arthritis, life-threatening allergies, obesity, and a number of other autoimmune illnesses. Children with autism really are the “canaries” that are letting us know that so much of our lives has become poisonous to humans, particularly developing humans.

And that is why I share this book with you today. All of the disorders that our children are faced with today, and the fact that those numbers are rising, scares me to death and breaks my heart.

To learn more about The Thinking Mom’s Revolution visit www.thinkingmomsrevolution.com. To purchase this book click here.

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18 thoughts on “The Thinking Moms’ Revolution Book Review

  1. tstarmom says:

    I will start … My son is 4 years old and has apraxia. He has not been diagnosed with any other disorders. In the past, he suffered from ear infections, nasty stools, asthma, food allergies, food intolerances, and eczema. He was given loads of antibiotics and steroid cream for these illnesses.

  2. JenLandaverry says:

    My Olivia has severe apraxia. No other underlying medical issues that we know of. She did suffer from frequent ear infections and colds. She had tubes put in her ears and her tonsils and adenoids removed. She becomes irritated and emotional and often sick with too much milk products. We do not know if this is an allergy but we do not give her milk very often (which stinks bc she loves a good milk shake but it makes her throw up!). She also had horrible time with bowel movements, but eliminating the milk products has helped with this. This book sounds like an amazing read. Other parents inspire me to fight even harder for Olivia and I hope one day to help other parents who are going through what we are going through now. We are hoping to make huge progress this summer. We are headed back to Nancy Kaufman in June and to Champ Camp at GWU in July. Praying for miracles so our little one can head off to kindergarten in the fall. Thanks for your blog and all the information you provide!

  3. Tiffani says:

    Hi, I am housewife and I am blessed with three kids. All are under 3 years. My older daughter has NF1 and I have 19 months old twins, one boy and one girl. I suspect that my boy has Apraxia. He cannot produce the exact sounds. I already had his ENT and audiologist appointment and it came out normal. So more journey ahead.

  4. Stacie says:

    Hi there!
    “The thinking moms revolution” book sounds amazing!
    My daughter is 2 years and 11 months old. She has Apraxia, hypotonia and some sensory issues. Her diagnoses is Static Encephalopathy. She has never had an ear infection, does not have food allergies and has never taken an antibiotic. I had a perfect pregnancy but she was born two weeks early with jaundice. My only idea for cause. I do believe she has food sensitives although no allergies. We have her mostly sugar and gluten free although I haven’t totally restricted her. She also takes fish oil and NV. She’s had early intervention and private Slp’s, OT and PT since 15 months of age. We’ve also tried therapeutic listening. As of now, she still only has a small handful of words and is very low toned. Hopefully with all the help we recieve and give her, she’ll beat Apraxia too!
    Best,
    Stacie

  5. Candace says:

    If I don’t win this book, I will be buying it. My son was first diagnosed with apraxia and SPD, then with autism a month later.

    There is no question he has sensory issues and autism. The apraxia, well…he just doesn’t seem to fit that bill any longer. He has been makin leaps and bounds within the last week with speech and he is so much more understandable. He needs speech therapy, but maybe he has a phonological issue instead.

    Either way, my son was very sick and has been making great progress with diet changes, supplements, and therapy.

  6. Bridget says:

    I have to tell you I feel so similar to you. I found TMR and thought the same thing. One more vaccine or antibiotic etc and Emmett would be classified as having autism. Now he has apraxia, hypotonia, asthma and I’m still struggling to figure out the gut/food intolerance/stool thing. I’m pretty lost on where to start with that. I have the TMR book and am eagerly anticipating reading it! I’m trying to wrap up plans for Emmett to attend Nancy Kaufman’s SPEAK camp and myself to attend the CASANA conference. Then the book is my reward!! I’m so looking forward to Professors chapter! Thanks for sharing!

  7. Jessica says:

    My son is 2.5 and diagnosed w suspected apraxia… Gets PROMPT 3 xs a week. His ears are fine. Barely ever gets sick. Didn’t say his first word until after 2 years old.

  8. Sandie says:

    Hi Tori. Thank you for your website. I stumbled upon it for the first time today while looking for reviews on the “Baby Babble 3” DVD (with T, D, N sounds) created by two speech language pathologists. (i actually just bought it but wanted to see what others had to say). My son, however, has already ‘said’ he likes it a lot by watching it intently, (listening to me talk/interact with him during the video, and by asking to watch it AGAIN as soon as the video was over–he even liked watching the tutorial at the end for parents). I have a teenage child who was born with a neurological congenital condition involving his brain called: Agenesis of the Corpus Callosum. My son has apraxia–is mostly non-verbal, with only a handful of words. He also has Sensory Processing Disorder. He is globally developmentally delayed and functions on the level of a young child. People who see my son question if he has Autism–but he does not. However, there ARE some people who have agenesis of the corpus callosum (ACC) who do have autism, are on the autism spectrum, or have PDD-NOS, (and they might also have several other medical conditions that are sometimes seen with ACC, My son has received many therapies and help from the time he was a baby–and one thing is certain in my eyes/heart/soul–there is always hope. Even though he is a teenager, he is continuing to learn and make progress and is making new sounds, and just yesterday he learned how to verbally SAY Bubble. Thank you very much for the opportunity to enter your generous giveaway for the book (and also for your great personal review/input about the book).

    I look forward to continuing to read your blog.

    P.S. And, because you have a section with iPad apps, I thought I would let you know that:
    In honor of Autism Awareness kindergarten.com is giving away (during April) all of their apps for FREE!

    http://kindergarten.com/

  9. Professor says:

    On behalf of all the Thinking Moms (and Dad), I want to thank you for your kind words. They made me cry. 🙂 I wish you tremendous success on your healing journey. ~ Professor

    1. Amber says:

      I don’t want to be entered in the giveaway because I do already own a copy of the book and would want someone else to win. 🙂 But I did want to say that I LOVE the book and Professor, your story is so much like my story and the one that I related to the most. I thank you and the other moms and dad that took the time to write your stories and share them with the world.
      And Tori, AWESOME of you to do a giveaway!!

  10. What an awesome giveaway, and an awesome review of this book! I’ll have to check it out!

    My little man will be 3 next month and is hearing impaired in his right ear, and has oral, verbal and limb apraxia. He’s made a lot of progress since we started going to a different SLP who knows how to work with apraxia, and we’re going to CHAMP camp in July like JenLandaverry mentioned above as well, so I’m hoping my little man and I learn lots of things there. 🙂 He’s just starting to say his first words: ow, no, hi, wawa (for water), baba (for bye bye) and mama (my all time favorite word!) 🙂

    Thanks again for the giveaway!

    1. tstarmom says:

      Congrats to Jenn S. for winning the TMR book! Hope it touches your heart as much as it did mine.

  11. suzy says:

    My daughter has apraxia. In addition, she has loads of allergies; environmental and lots of food allergies, eczema and asthma. She also has reflux and hypotonia. My daughter has chronic stomach pain and we are trying to get to the bottom of things (by ruling things out) but have yet to find the root cause. The book sounds really interesting and I would love to be the lucky winner 🙂

  12. Angela says:

    Hi Tori! My son just turned three and has been diagnosed so far with apraxia, mild dyspraxia and some sensory issues. He has had chronic ear infections, chronic runny nose and some gut issues which I believe are due to antibiotic usage. We have found no evidence of any IgE allergies other than dust, but have him on a gfcf egg free diet after finding out he has IgG sensitivities. My daughter is 4.5 and has been diagnosed with ADHD with sensory issues as well. She has rarely been sick; however, I had a serious kidney infection while pregnant with her. Thanks for the post! I already have the book, so please choose someone else for the give away.

  13. My 9 year old son, Grayson, has Diabetes Type 1 and wears an insulin pump. He didn’t speak until after 2 years old…memorized lines from videos and used them appropriately. His first spontaneous words were Woody and Buzz. He has diagnoses of Asperger’s, ADHD and Dyspraxia. He has food allergies and is a picky eater who had a feeding skills delay (couldn’t handle eating a Cheerio until age 18 months; he eats no meats or fish; no vegetables; LOVES pizza, but has a dairy allergy…eczema). He is an energetic, entertaining boy with a performer-type personality who is studying Musical Theater, Voice, Acting and Hip-Hop. He’s a such cool kid!

  14. G's mom says:

    Please share this book with your followers…..

    Gut and Psychology Syndrome: Natural Treatment for Autism, Dyspraxia, A.D.D., Dyslexia, A.D.H.D., Depression, Schizophrenia
    Natasha Campbell-McBride (Author)

    1. tstarmom says:

      G’s mom – Thanks for the recommendation. I want to read this book. I think you told me about this book before? I’m pinning it in Pinterest right now so I won’t forget! 🙂

  15. milleraj21 says:

    Hi there, I have the GAPS book mentioned by G’s mom and have found it very useful. It was overwhelming at first to consider so many diet changes but after we found out C had severe food sensitivities this is the book I came back to to help me figure out how to start healing his gut. We do lots of homemade bone broths, probiotics, GFCF, but honestly don’t follow her diet to a “T”. I would recommend the book as a resource for those looking at how digestive issues can play into other health issues.

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