Jake's Journey with Apraxia

And the Friends We Met Along the Way

A few months ago, I blogged on a study that was done in 2009 that suggested that apraxia could be caused by nutritional deficiencies, sensitivities, or allergies within the body. (Click here to read). At the beginning of May Dr. Claudia Morris, who performed that study, gave me some additional information on nutrition and apraxia via email. She also attached this You Tube video …

 

* Disclaimer: Always consult with a doctor before beginning any diet or supplement program. All data and information provided on this site is for informational purposes only.ย 

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15 thoughts on “Claudia Morris, MD (2011) Video Presentation: Innovative Uses of EPA & DHA for Apraxia

  1. Laura says:

    Hi. ๐Ÿ™‚ I’ve been reading your blog for awhile now…My son has suspected apraxia and I was wondering if you could send me the link to the Thomas books you wrote about? Charlie is obsessed with all things Thomas and I’m thinking these might be good for him. Thanks. ๐Ÿ™‚

    1. tstarmom says:

      Hi Laura! I ordered these out of the book fair magazine at school this year. It is a set of 12 little books and they come in a case. The actual name is “Thomas the Train – On Track with Phonics.” From the beginning Jake has loved them. The books gradually progress from one word on a page to full sentences by book twelve. I got these books “just to read,” but there isn’t a real plot like the regular Thomas books you’re used to and the real benefit has been phonics & easy words that he doesn’t mind repeating. They’re about $12 at Amazon and here’s the link http://www.amazon.com/Thomas-Friends-On-Track-Phonics/dp/0375853685/ref=sr_1_1?ie=UTF8&qid=1340103316&sr=8-1&keywords=thomas+the+train+phonics+books

  2. I am no help, but am very interested in nutrition for Apraxia, as well. We go to Akron Children’s at the end of July for our first specialist appt.
    I am nervous and excited.

    1. tstarmom says:

      Hey Misty, Thanks for your comment. What are you doing at your specialist appointment? Any kind of testing? I looked Akron Children’s up online. It looks like a great facility.

    2. Ashley says:

      Greetings! My son just turned 2 and was diagnosed with apraxia. I know this post is over a year old, but I just found this blog and am making my way through the Jake’s journey. Daytimesparkle, who did you see at Akron Children’s?

      1. tstarmom says:

        Ashley– Glad you found my blog. Hope it is of some help to you in your son’s own journey with apraxia. Also wanted to mention Daytimesparkle has a blog with her contact info. I think you can get it by clicking on her name where she commented. I think you have to click to be notified of comments and not sure if she would see your reply.

  3. Becky says:

    I’m interested to know if you find anyone who has had success with dietary changes. I’ve asked both the pediatrician and speech therapist and they both poo-pooed diet as an issue. But, I have the resources for the Feingold diet and the GAPS diet. The diets are just so restrictive and it is hard to make such drastic changes, that I haven’t yet tried. I have limited preservatives and artificial dyes and flavors.

    1. tstarmom says:

      Becky, I asked my SLP and she seemed open to the idea and actually let me talk with another SLP in the office who took her child to a Brain Balance Center where diet did make a difference. Thanks for mentioning those 2 diets. I haven’t heard about them. Dr. Morris mentioned the FailSafe Diet.

  4. bitty'smom says:

    Does Little Man have a problem with wheat, soy or milk?
    If not, have you tried the Ella’s Kitchen organic baby food pouches?
    My Itty Bitty has suspected apraxia (she isn’t 3 yet, so no one will commit)
    I have been working on her diet and found that when she can’t or won’t eat she can usually suck down at least one pouch. She’s allergic to milk protein and I’ve been working on increasing her calcium from non-soy sources, so we love the broccoli and spinach ones. She prefers the sweet potatoes with blueberries, but she gets greens or orange (carrot, parsnips) as often a s possible.
    I think the texture and the fact she gets to suck them out of the pouch gets her to eat things she will never ever eat if i cook them.

    1. tstarmom says:

      At this point, he does not have a problem with wheat, soy, or milk. Thank you so much for the recommendation. I am always up for trying new things. I looked that product up online and it said I could get it at Target. Where do you get yours from? I will check around and see if I can find it. Again, thanks for sharing.

  5. bitty'smom says:

    Where are my manners? I meant to start by thanking you for sharing your journey and experiences here…. we’re just starting and I’m a lot less afraid and a lot more organized after reading your blog. Thanks.
    I get our Ella’s Kitchen pouches at Target mostly, but they also carry them at Babies-R-us, Toys-r-us, Whole Foods and our local grocer, Fred Meyer. We stock up whenever there’s a sale. They’re great to throw in the travel bag when allergy baby might need a snack.
    The Plum Organics brand is similar (organic, no bpa in packaging) and less expensive BUT, the Plum Organics uses a Lot of lemon as a preservative, so everything from Plum tastes pretty much the same to me. And i think they are a little too acidic. ( Miss Bitty looks a little flushed if she eats more than one Plum Organics pouch in a sitting) I spend the extra 10 or 15 cents for the Ella’s.

  6. milleraj21 says:

    I just watched the video of Dr Morris’ presentation and I have chills. The symptoms are my son – exactly. I would love to hear how this journey has gone for you and if you have tips for someone just starting down the bio-medical route. I am in Atlanta and am trying to find a knowledgeable MD that can help us. Any advise or suggestions would be very welcome! And good luck to you and your son!

    1. tstarmom says:

      milleraj21 – I have lots of tips! Would love to hear more about your story. Please email me at tstarmom5@yahoo.com.

  7. Catherine says:

    Hi, I’ve just come across your website – Love it. My son also has apraxia (4 yrs old) and I hear “Mama Do!” a lot too! RE diet: I feel that I’ve had improvements with removing sulphite preservatives and food additives and colours from our diet. If you are still not happy with his diet, maybe look into sulphite preservatives (E220-228) and how much of it is in your diet? I have also read some things saying that its important to make sure apraxia kids get lots of exercise – that it helps things in the brain, I can’t find my link to that info though. I will try and get back here at some point with some links.

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