It is amazing the difference 365 days can make in the land of apraxia. Just listen to Jake this time last summer …
And here he is now …
Yes, there are still loads of things that we are working on with his speech: pronouns, improving auditory memory, “w” questions, using articles, and longer sentences. It is a slow process, but it is happening.
I share this video because the last time I wrote I was mad, distraught, and discouraged because Jake’s latest skin-prick test that showed that his allergies had gotten worse instead of better. But, isn’t it just crazy that I am not in eternal thankful mode for his almost resolved apraxia?
I had overlooked this enormous detail until I went to Jake’s one year follow-up appointment with our holistic doctor two days after his allergy test last month. His doctor was all smiles … our main objective this past year was to beat apraxia – and essentially, with the assistance of speech therapy, we did just that. If the food allergies also improved, that was just an added bonus.
And here’s yet another resolved symptom that had caused Jake and I much angst for two full years …
Despite an occasional flare-up when he cuts loose and runs through the grass barefoot, the eczema on his feet is a thousand times better. Thank goodness this hurt is off my heart now.
And I let that allergy test get my spirits down? How were these emotions possible when I’ve been so blessed? There was a time when the only thing that mattered was finding the voice that was trapped inside the little boy whose only form of communication was his big, sweet smile and his bright, kind eyes.
With this enlightenment at the doctor’s office came other things that I was reminded to be grateful for.
For example, Jake has successfully accomplished one year of GFCF eating. One year! One year of no pizza or ice cream. One year of politely declining the special goodies that surround us in all social situations. One year of Jake saying, “Dat make me sick?” to almost every single item that lines the isles in the grocery store. In the beginning, this mission in itself sounded impossible, but now we are cruising.
We also made it through the initial tough months of starting new supplements. It was hard. It was ugly. But we made it and now Jake will remind me if I forget to give him his vitamins and quite often, will even take care of it all by himself. I have read that children who are truly deficient eventually respond this way to their supplements, but one year ago, I never, ever thought Jake would fall into that category.
So, how did our follow-up appointment go? What did our doctor have to say about Jake’s increased food allergies?
My word count went way over for this post, so tune in on Saturday for Part Two!
In the meantime … HELP!!!
Jake will be starting a half-day Pre-K 4 program at a local church in less than two weeks and I am busy putting together some information for his teacher and school. I scheduled a conference with his new teacher on Thursday, August 22nd.
Are any of you doing private preschool instead of public? Any of you only doing private speech therapy and therefore don’t have an IEP to hand over? Should I include his latest speech assessment and goals? Is it just me or is more pressure put on the parent in this scenario to educate and devise a plan? Are smaller, private schools less educated on food allergies?
If any of you can lend any advice, feel free to email me at firstname.lastname@example.org or comment below for other parents to see. I’d love to hear your thoughts.
* Note: I added a “Videos” tab to the top of my blog if you would like to view additional clips of Jake’s speech over the past two years.