“Speaking of Apraxia” – Review & Giveaway

Disclaimer: Leslie Lindsay provided me with a free copy of “Speaking of Apraxia” to offer as a giveaway on my blog. I was under no obligation to write a positive review or sponsor this giveaway.

The longer I am a mama to a child with apraxia, the more I wonder if our lives will ever be the same again. It’s like when you are pregnant for the first time, you hear experienced parents say that all-too-familiar phrase, “A baby changes everything.” And as much as you try to ignore those comments and fight to defy the odds, the fact of the matter is, becoming a mother is a lifestyle change. It’s not something you do for twenty minutes a day, three days a week. Motherhood consumes your prayers, thoughts, actions, and words.

The same is true about parenting a child with apraxia … only it’s not something that everyone tells you about. You have questions, but not a network of people surrounding you to offer advice. You are full of doubt, wondering whether you are doing the right thing for your child, but no one you know has walked in your shoes to point you in the right direction. You spend hours googling and learning everything you can on this speech disorder, but usually only find you have more questions, doubt, fear, and confusion.

Leslie Lindsay’s book “Speaking of Apraxia,” which was released in March of this year, is a must-have for any parent who has a child with apraxia. It is a comprehensive encyclopedia on childhood apraxia of speech (CAS) and also a self-help book for both parent and child.  In addition to having over 400 pages full of facts, Leslie chronicles bits and pieces of her own daughter’s journey with apraxia. Also, each one of the sixteen chapters includes a section called “Read on! Recommended Resources,” which lists additional books, programs, and websites to refer to if you’d like to learn more about a specific topic.

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Before I read “Speaking of Apraxia,” I felt like I was fairly knowledgeable about this disorder, but I still had a few unanswered questions. After all, I have a Journalism degree and reading is my passion, so I had already spent an infinite amount of time researching on the internet. When I first pre-ordered this book at the beginning of 2012, my goals were to fill in the blanks I had about CAS, learn more about nutritional supplements, and also get some ideas for at-home speech activities.

This book far surpassed my expectations and “wowed” me! It reiterated some of the things I already knew, while at the same time, taught me many new things. One of my favorite chapters was “What You Can Do at Home: Tapping into Your Inner Speech-Language Pathologist,” which was almost forty pages long! This will be a great resource for me since Jake is now out of school for the summer and we’ll have a few extra hours together each day.

Someone commented on the “Speaking of Apraxia” Facebook page that, “This book is like the ‘What to Expect When You Are Expecting Book’ for apraxia.” And I agree. It is a book that will remain out, laying on your coffee table or nightstand with dog-eared pages and highlighted excerpts. A book to rely on when a question arises now or in the future (the last few chapters are “Off to School”, “Learning to Read & Write”, & “Resolving Apraxia: Where Do We Go From Here?”).

In the last chapter, Leslie shares how the idea of writing this book originated while she was talking to her daughter’s SLP.

“I went on to explain that I just wanted a book, a real-life book, I could hold in my hands and read and go back to refer to if I needed. I wanted a comprehensive guide that would start at the beginning and cover the definition of apraxia, what caused it (even if it was just a bunch of theories – I didn’t care – I wanted something, anything), and what I could do about it. Most of all, I wanted something I could relate to.”

And she has succeeded in doing exactly that. Only a mother of a child with apraxia could write such a heartfelt book that will tell you everything and more you ever wanted and needed to know about this speech disorder. Leslie blogs at http://leslie4kids.wordpress.com/ and you can get your own copy of “Speaking of Apraxia” at http://www.amazon.com.

** Four chapters into this book, I contacted Leslie Lindsay and asked if she would be willing to give away a free copy of “Speaking of Apraxia” in honor of Better Speech and Hearing Month. She said yes! To register, all of you have to do is leave a comment below (what you say is up to you) or shoot me an email. Registration will close at the end of the day on Tuesday, May 22nd and I will announce the winner a week from today. Best of luck to you! **

Disclaimer: Leslie Lindsay provided me with a free copy of “Speaking of Apraxia” to offer as a giveaway on my blog. I was under no obligation to write a positive review or sponsor this giveaway.

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42 thoughts on ““Speaking of Apraxia” – Review & Giveaway

  1. Thank you for sharing this. I hadn’t heard of this book until today and I would be MOST interested in reading and learning even more about CAS than I know. :) love what you are doing!

  2. hi..I have been following your blog for a while (and you recently posted on mine…waitingonwords.com). I’m sorry I haven’t had a chance to reply sooner. Your posts are all too familiar to me and I can relate to everything. I also have followed Leslie and have been anxious to read her book. I hope it’s a success! I wanted to share some positive news in that Henry has been doing fantastic these last few months! He has grown so much and we really feel like we are getting over the hump with this apraxia thing. He will have a few more years of therapy left I’m sure but I no longer worry about it negatively affecting him socially or anything like that… he’s a fighter :) hope all is well with you

  3. Hi! I have been following your blog while I adjust to the crazy, surreal world that is our life with our newly diagnosed apraxic two year old, Max. I follow several blogs on the topic, hoping to find clues on how to navigate the sudden maze of choices and questions we have been dropped into. Deciding whether to pay for private therapy now that 5 months of PROMPT therapy with the insurance-assigned therapist has only resulted in more lost words, how to push back when the state evaluator said Max — who has 4 words! — doesn’t qualify for Birth to Three because his cognitive abilities are too high and he’s too communicative via sign, trying to decide if the very expensive private speech-focused preschool is necessary or if we should go to the local public developmental preschool, fearing that the fact that his 8 month old sister hasn’t started babbling yet means that we will have speech problems with her too — these are some of the questions I’ve been dealing with just this week alone. I always hope I will find someone in these blogs who has encountered the same question I have. I had heard of Leslie’s book before on your site and it’s sitting on my Amazon wish list in the hopes that maybe it will speak to the constant barrage of questions I face.

    Also, since I’m leaving a message for the first time — THANK YOU for your blog! I find it enormously helpful and comforting to read of others dealing with the same issues we’re facing in our house.

    • loved your reply. I am a fellow mom of an apraxic 3 year old and while most of us have experienced very similar situations each one is different. ALWAYS fight to get your child services! ALWAYS – We tried 3 times to get into EI services and finally the 3rd go around we made it, she ended up getting EI for all of 2 months – and is now transitioning into the school system with only 3 weeks left of school so even though it took me a year to get what I wanted its now happening. Please don’t hesitate to reach out and ask questions. Have you found the facebook groups yet? also there may be support groups in your area – feel free to check out my blog as well, :) welcome to our world!

      • Thanks! I did call the state and fight. Surprisingly, they caved immediately on the phone. I don’t know yet what he’ll qualify for in services, but they agreed he should be getting them and the state is coming next week to determine what services that will be. I’m excited because it will be home-based therapy, which will be a huge help since right now he has 3 therapy appointments a week plus a 45 minute drive each way 3 times a week to a special early learning center with special education teachers. I got the impression they had denied my original claim because we’re not at poverty level, and by appealing I got their attention. The real reason I wanted to appeal was that the city of Seattle, where we live, has a relationship with an experimental speech preschool at the University of Washington staffed by SLPs and OTs, kids who need services go there free. But the city has to place you. I have another fight on my hands, since my son was born in December and you have to be 3 he can’t start this fall, and they were filling slots for next fall while I was appealing the decision, so now I have to fight to get them to open a slot. It never ends! The past few months have been hard, especially since Max hasn’t been responding to the twice a week PROMPT therapy as we’d hoped. He has gained individual sounds (can say most phonetic sounds now) but lost most of his words in the process. And he can’t combine the sounds into single or multisyllabic words on command. It’s hard to see him trying so hard, he knows he’s doing something “wrong” but doesn’t know what it is or how to fix it. (sigh) Anyway, I’ve joined the apraxia FB group, which has been enormously helpful so far. And I have so greatly appreciated how generous and supportive everyone has been. So thank you, and to everyone else who has been so helpful and kind!

      • Stacy, Thanks for your comments! The good news is, it sounds like you have a lot of resource options available to you. And, it’s so great that you’re being so proactive to not only seek early intervention at such a young age, but also that you’re willing to fight for it. You go, girl!

        My advice although simple, is to follow your gut. If a certain therapist doesn’t feel right or if your child isn’t progressing, look for someone else with a different approach or personality. For example, I was going to a private therapist & public school therapist at the same time and Jake would say his words perfectly to one therapist, but not the other. I have found now that he is 3 1/2 & able to say approximations and correct words at therapy that he does better if he says 20 words at a time and then takes a turn with a game. The other therapist, who he was not doing well with, was drilling the exact same words, but doing them one at a time. (One word,game,one word, game, etc.). I would have lost all hope if I would have continued with that approach.

        I know, money,insurance,paperwork, etc. muddy the waters, but if in the end, you find something that works, then it will all be worth it. :) If PROMPT isn’t working, try hand prompts or some other approach. Leslie has a whole chapter on different types of therapy for kids with apraxia. I thought it was interesting that many kids get OT while also getting speech therapy b/c their words come easier if they are moving (vestibular system). Jake is very coordinated and so I had never even considered using this approach with him. I took him to the playground to swing while doing his words for 3 straight days after reading that chapter!

        Last, Max is 2 1/2 and will be 3 in December, right? If so, keep the faith b/c Jake could only say 5 words at that age and those were not even on a regular basis. Once he turned 3, he at least stopped being silent, grunting, pulling me, etc. and started trying to say “something” at least. Once he got to that stage, I felt much more reassured that if I could find the right person to work with him, we would eventually unlock his voice. Hope this helps and best of luck to you!

  4. This is not to enter into the contest, because I have this book. I just simply wanted to comment and say what I’ve said to everyone I’ve talked to about this book – I wish I had this earlier in our apraxia journey! I haven’t finished it yet, but I’m more than halfway done and the book is FABULOUS. This is what I needed early on to help me understand what the SLPs were telling me. It seems to take what I’ve read from many different sources and many things I didn’t know and put them into one easy to read location. Way to go Leslie!

  5. I’ve read two other books about CAS. I’d love to read another from a parents perspective. I just heard about this book and it sounds great. I’d love any help I can give my 2yo.

  6. I don’t need a copy, because I also preregistered in early 2012. I can’t agree with you more. It is very well written, and in my opinion, a must-have for parents.

  7. never heard of this book until a few minutes ago. I have a son with apraxia and aphasia. It has been a long journey for the both of us. I would love to be entered in the drawing for a free copy of the book. Thanks!

  8. Just discovered your blog tonight via the Metro Atlanta Apraxia FB group. I have a 9 year old with apraxia and dysarthria and I would love to be entered into the drawing for the book. Thanks for sharing Jake’s story with us. I look forward to going back and reading more about your journey!

  9. I pray for help with my 8yr old daughter with apraxia everyday. She is progressing but as you know it’s a hard go. We would love this book. Thanks for your blog!

    • Hi Susan,
      I think this book would help any parent who has a child with apraxia, regardless of how severe it is. The last section specifically deals with older children and coping with school and any reading challenges they may have. Also, the at-home activities I think you could use for any age group. Leslie’s daughter with apraxia is in first grade now and she got diagnosed at two, so she’s experienced it from toddler years through elementary school.

  10. I have a 4.5 yr old daughter w/ CAS. I would love a book like this to have as a reference. I try to learn as much as possible and work w/ her therapists to do all I can to help her, but sometimes I worry it is not enough. She is having some improvement, but as I’ve heard others say, it’s slow going. Thank you.

  11. This isn’t to enter the competition or less the book would need to be posted to Australia!!! I just wanted you to know that I think your blog is an awesome resource…especially to those parents with newly diagnosed children. Your website has lots of great practical ideas and information..I love it!

    • Thanks for the kind words Nicole! What a nice compliment. I feel like I know you so well even though you live all the way in Australia! You know I’m a fan of your blog as well… Have a good weekend-

  12. I have just found this blog a hour ago and I already feel less anxious and more hopeful for my three and a half year old Spencer. Thank you to all of you who write comments I really needed this tonight and I feel very blessed to have found this site when I mentally needed. I now work two jobs to pay for my son’s therapy. Sometimes I just have to remember to enjoy today and not borrow tomorrows worries today. Thank you again and I hope to read a copy of the book soon.

    • spenniemama- Welcome! So glad you stumbled upon my blog and found it helpful and comforting. How nice that our boys are the same age. Take care and best of luck to you and your little one in this journey.

  13. I look forward to reading it. We have suffered many of these same situations. Our son was diagnosed at two, but at three and a half, he has come so far. Very proud of him. Thanks for the tiga suggestion. We downloaded it.

  14. Thank you so much for starting a blog about Apraxia. I am going to order this book today. I have been looking all over the web for more information on Apraxia and parents with children with Apraxia. My daughter will be 5 in July and has apraxia. We have been very fortunate as far as ST is concerned in our town. Kyleigh attends an integrated pre-school. She receives her ST and OT in school. Her hours are 8:30- 1:00. The regular ST everyday has helped 100%. Next year she will start kindergarten and be in a regular kindergarten class but taken out for speech. Her speech is NOT on level with a typical 5 year old. She has a long way to go but she can string 3-5 words together to form sentences but then other sentences are hard to understand. At 3 my daughter didn’t respond well to ST. She didn’t want to cooperate but now at 4-1/2 she will willing to take the risk and try and that has made all the difference.

    I wanted to mention this website to other moms out there. Typically children with Apraxia struggle with fine motor skills as well. My daughters school follows this curriculum. Its awesome and the kids love it. It really helps children learn letters in a fun way.

    http://www.hwtears.com/hwt

    I look forward to reading your blogs and following Jake’s progress. :-)

    • bostonmom- Thanks so much for stopping by and sharing your story. My county doesn’t provide a special preschool like I’ve read about from other parents, but they’ve recently passed a bill that will allow us to go out of county to seek services. Also, thanks so much for sharing the website. I can’t wait to check it out.

  15. I’d love to win this book. Especially after our IEP meeting this week where the school recommended speech therapy 5 days per week. He has been doing speech for 3 years already and he still needs 5 days per week. I’m so happy they are staying on top of it, but so sad that his apraxia is that severe. Thank you for the recommendation and the giveaway. <3

  16. Pingback: Keeping it Simple and Sweet « Jake's Journey to be a Little Man

  17. It feels like my world came to an end yesterday – my 30 month old boy went for a speech evaluation and the therapist suspects Apraxia. She told me to read about it and we will start therapy (once a week) next week. After a couple of sessions she will probably refer us to a neurological pediatrician for a diagnosis and speech therapy sessions could increase. There are so many questions I have and life is just very hard at this moment. My little baby girl is now 12 weeks old and needs physiotherapy to improve muscle weakness and I am on unpaid maternity leave till next week. I am worried about juggling work, two kids, speech therapy and physiotherapy. How did all this happen? And will anything be ok ever again?

    • Eandra, PLEASE don’t assume the worst just yet! My son received the diagnosis at 24 months. He was a complete textbook case, lost his words several times after he started speaking and would have “pop-out” words where he would say a word or phrase perfectly once, but then be unable to repeat it on command. He also couldn’t move his tongue volitionally and we would often see him groping for words, trying and failing to make his mouth work. It was heartbreaking. After receiving the diagnosis we were terrified, fearing that our son would never learn to communicate properly and might not be able to be fully independent as a an adult. We took him to multiple apraxia experts for second opinions, and one suggested that OT for focus and regulation might help him as well, enabling him to settle down and focus on the workings of speech. So now my son had speech therapy twice a week, OT once a week. And like you, I had a 3 month old daughter and was about to return to work full time. It was extremely overwhelming and I seriously considered going part time at work, even though I was the primary breadwinner. The first 6 months were hard and scary. We taught my son Max sign language and began picture exchange communication at home (I don’t know about your house, my my house lived around Max’s moods at that point, he was extremely frustrated by his inability to talk and would have truly scary meltdowns that would last an hour or more sometimes. Once he was able to communicate with sign and PECs, the meltdowns reduced dramatically. The OT helped with this too, I think.) We also started him in an early learning preschool to give him exposure to peer speech. We made the therapy work — in our case I took my son to OT, my mother took him to one speech therapy session and my husband did the other. It was never easy, but we got through it and now it’s routine for all of us. Then after 6 months of all this, my son started talking! He’s 3.5 now. At his 3rd birthday he was still quite difficult to understand, though he was speaking in paragraphs. In the past few months his articulation has improved enormously. Some people are surprised to learn he has a speech problem. He’s still “mushy” with articulation in his words, especially in longer sentences or words, but he’s largely understandable now. Meanwhile, the behavioral piece with the OT has turned out to be the biggest piece of all for us — we now know Max has sensory processing disorder (many kids with an apraxia diagnosis also have other issues) and a year of therapy has made a world of difference in his behavior, as did school, we think. His speech is far from perfect but we no longer worry that he won’t speak or have a “normal” life. And the chance to find out about his sensory issues has made a world of difference in our house, and has enabled Max to get a handle on some of his sensory seeking behavior and starting controlling it better. I cried a lot the first year, but now I can see that the early intervention was the best thing for everyone. The problems are surmountable, but only if you face them and deal with them! I can’t promise your son will follow the same path, but I can basically guarantee it won’t seem so scary and overwhelming a year from now.

  18. My son was just diagnosed with Apraxia, so I am just beginning my journey with him, trying to help him in anyway I can. Your blog is actually the first reference I can came across, and I am already feeling more at ease knowing I am not alone as a parent of a child with apraxia. Due to crappy insurance which doesn’t cover many speech therapy visits, I will be my son’s therapist, which I am actually excited about! So, it’s time for me to dive in and start learning all I can about this disorder. I desperately want to know what my son is thinking and to be able to communicate with him better. I want to hear him say, “I love you.” I would love to have a copy of Speaking of Apraxia. I have so many questions and am just starting to search for answers. I’m looking forward to educating myself and helping my son speak. Thank you for the chance to win this book!

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